This past week kept us busy again with medical situations. Jacen was still recovering from his ear infection. I had what we think was allergies and a sinus infection which was treated with antibiotics and a shot. Nathan was coughing and didn't seem to feel good either. On Wednesday, while the Respite nurse Rhonda was here, and I was gone to an allergy appointment, she called Hospice because Nathan was having trouble breathing and was swollen. Upon my return she and Heidi were in contact with Dr. Gray who wanted blood work and a chest x-ray. I took Nathan for that, and it was determined that he had an upper respiratory infection and was retaining fluid. The fluid could be because of the infection or because his kidneys are shutting down. At that point it was a wait and see situation. Heidi came by again the next two days and Kyle was in contact with Dr. Gray. Late Thursday afternoon, Dr. Gray called to have us bring him in Friday. We did more blood work, they weighed him, did a urine sample, and checked his oxygen level. That was low, so he received oxygen for about 30 minutes. The blood work looked better than Wednesday, so we were sent home with instructions for Heidi to get us an oxygen monitor and oxygen in case we needed it. We ran by to get a blood pressure check with Dr. Robinson and then went straight home. After a weekend of monitoring his feeding, urine output which was better, and oxygen levels, Heidi came by today and agreed with us that his swelling looks about the same or maybe a little better than Friday. We will return tomorrow for more blood work. At this point, he seems more like himself, but in reality it is still a wait and see situation. His kidneys have been put through a lot over the past few weeks with the stomach bug, two rounds of fluids, and the upper respiratory infection. They are not sure if they will fully recover back to his normal, slowly get worse from all the trauma, or what.
We will keep everyone posted as we can. We would appreciate prayers for healing (or a miracle) for Nathan, peace and comfort for all of us dealing with what is to come, and when it is necessary wonderful Hospice counselors to help us through this situation especially how to get Jacen through this.
Jacen holding Nathan and giving him "sugars"!!!!
Jacen playing outside with my phone instead of his basketful of toys :)
Jacen wanted to be like me, so we got his chair and phone out to sit by me :)
Daddy reading to Nathan. That is the happiest that I ever see Nathan. He loves his Daddy reading to him!!!!!
Jacen wanted to type on Daddy's computer :)
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