We never seem to have boring weeks around here. After Monday, with my Mom and Stepdad leaving, Heidi (Nathan's hospice nurse) making her visit, and our trip to the chiropractor, we never slowed down. Tuesday was Nathan's two hour EEG followed by our appointment with Dr. Brown. At the appointment it was decided to increase his phenobarbital dose to 7mLs to hopefully decrease the subclinical seizures that Dr. Brown saw on the EEG as well as to get him to a level between 20-25 which should be more comfortable for him than the current 15. Wednesday Rhonda, Nathan's other nurse, was here for 5 hours, so Jacen and I met up with friends at the Science Spectrum to play. Thursday was another eventful day. The plan was for Jacen and I to run errands while Rhonda watched Nathan. We got a few errands ran and then ate lunch with Daddy. We returned home to find out that Nathan hadn't had a single wet diaper and wouldn't keep any food down. So that led to some phone calls which then led to an ER visit after our normal Thursday chiropractor appointment. Thanks again to Hailey and Kristin for watching Jacen!!!!! Nathan was only slightly dehydrated, so fluids were given and after being there for 6 hours we were able to return home. Friday finally comes along and we take Jacen to an appointment because he has had a cough all week long to find out that he has allergies and an ear infection. Nathan also had his weekly blood pressure check. The rest of Friday was pretty calm because none of us at home really felt good. I am hoping for a calmer and healthier week this week!!!!!
Nathan during his EEG.
Science Spectrum with Elizabeth, Briley, Avery, Kim, and Katelyn
Briley, Jacen, and Avery at the table that spins.
It was more of a challenge than I thought to get 4 kids to pose for a picture :)
Jacen and Katelyn looking at snakes.
Jacen, Avery, and Katelyn
If you look closely all 4 kids are looking at the trains!!!!
Jacen loves to climb up in the recliner with Nathan and sit. He is such a sweet brother :)
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