Wow!!!! Another Exciting Week!!!

We never seem to have boring weeks around here.  After Monday, with my Mom and Stepdad leaving, Heidi (Nathan's hospice nurse) making her visit, and our trip to the chiropractor, we never slowed down.  Tuesday was Nathan's two hour EEG followed by our appointment with Dr. Brown.  At the appointment it was decided to increase his phenobarbital dose to 7mLs to hopefully decrease the subclinical seizures that Dr. Brown saw on the EEG as well as to get him to a level between 20-25 which should be more comfortable for him than the current 15.  Wednesday Rhonda, Nathan's other nurse, was here for 5 hours, so Jacen and I met up with friends at the Science Spectrum to play.  Thursday was another eventful day.  The plan was for Jacen and I to run errands while Rhonda watched Nathan.  We got a few errands ran and then ate lunch with Daddy.  We returned home to find out that Nathan hadn't had a single wet diaper and wouldn't keep any food down.  So that led to some phone calls which then led to an ER visit after our normal Thursday chiropractor appointment.  Thanks again to Hailey and Kristin for watching Jacen!!!!!  Nathan was only slightly dehydrated, so fluids were given and after being there for 6 hours we were able to return home.  Friday finally comes along and we take Jacen to an appointment because he has had a cough all week long to find out that he has allergies and an ear infection.  Nathan also had his weekly blood pressure check.  The rest of Friday was pretty calm because none of us at home really felt good.  I am hoping for a calmer and healthier week this week!!!!!

Nathan during his EEG.

Science Spectrum with Elizabeth, Briley, Avery, Kim, and Katelyn

Briley, Jacen, and Avery at the table that spins.

It was more of a challenge than I thought to get 4 kids to pose for a picture :)

Jacen and Katelyn looking at snakes.

Jacen, Avery, and Katelyn

If you look closely all 4 kids are looking at the trains!!!!

Jacen loves to climb up in the recliner with Nathan and sit.  He is such a sweet brother :)

Never a Dull Moment

There is always something to keep our life interesting.  This past week Nathan was coughing and having rapid breathing.  So after a doctor visit, we did breathing treatments for a few days.  He is better now.  We also had a cardiologist appointment last week with our new cardiologist Dr. Robinson.  So far we think he is going to be great.  He put Nathan on a different med for his blood pressure.  We will go check the blood pressure weekly, and then return in six weeks for another appointment. 

Jacen has figured out how to give Patches treats :)

Nathan is using a stander that a friend (Thanks Sherie!!!!) let us borrow.  He seems to like "standing"!!!!!!

Jacen loves the train table at Mardels!!!  So much that he throws a fit when we try to leave :(

Science Spectrum!!!!!

PLAYING OUTSIDE!!!!

Nathan was swinging while Jacen played with cars.

Grandma and Grandpa came to visit this weekend.

Jacen showing Grandma how to play a game on my phone :)

We Are All Feeling Better!!!!!!

 Nathan's blood work looked more like his normal this week, so praise be to God.  There is really no other explanation if you know how bad his numbers were and how much of the fluids he retained.  The only explanation is that God still wants him here.  Thank you all so much for prayers for our family!!!!!

I didn't get too many pictures this week.  After spending 3 nights in the hospital, I had a really hard time getting back into a routine.  We hit the ground running with his ECI visits, so most of the pics are from Friday.  Oh well.  I will work on more pics next week. 

Jacen still loves his baths.  But now he likes to lay on his tummy and splash.  :)

Nathan on tummy time.  

I didn't get too many pics of Nathan this week because he spent a lot of time resting and recovering.

Play Time!!!!!

We played cars on the slide :)

We got to spend an afternoon outside.  Yay for warm weather!!!!

We even took a stroller ride and walked Patches but he wouldn't pose for the picture :)

Another Crazy Week!!!!!

The first 3 pictures are of Nathan and Jacen holding pictures that a sweet boy named Gideon colored for the boys.  His family keeps up with us on our blog and brought the pictures to my Mom in Goldthwaite.  Thank you Gideon!!!!!!

Below are pics of our snow this week which is the coldest week that Lubbock has seen in a long time with temps in the single digits and wind chills way below 0. 

Jacen  just wanted to walk around in it but definitely not touch it!!!!!

Patches loved running in the snow :)

There was ice under the snow here, so Jacen was fascinated by the crackling sound it made when he stomped on it.

He walked all over the yard following Patches!!!!

I caught Jacen drawing with his right hand (he usually writes with his left), so we will still have to wait to see what hand he chooses.

Patches actually being still for Jacen to pet him!!!!

Jacen in the recliner with his keys Daddy gave him, the keyboard, and my phone.  Forget kid toys :)

We all got the stomach bug during this very frigid week.  Nathan got dehydrated, so he had to stay in the hospital from Friday to this Monday.  It was a long weekend.  They had to carefully rehydrate him while closely monitoring his kidney function.  With Nathan's impaired renal function this wasn't an easy task.  We came home with his numbers almost back to his normal but his little body retained some of the fluids.  So we are waiting to see if his body will flush the fluids on its own.  

While in the hospital Daddy read some books to him.

It snowed again on Sunday.  Jacen wanted to go outside and play!!!!  It didn't really stick but the flakes were huge!!!!