Nathan

We haven't been to any new appointments lately, but for those of you who would like to know his current medical status. The bloodwork shows that everything is about the same. So Nathan's kidneys are functioning at about 25% still. He still has many problems including brain, kidney, and liver damage. As each day goes by we can see more and more things that Nathan can't do that Jacen can. We have our good days and bad days for all of us. He still works with ECI. We are working on trying to get him to not clench his fists. We are also using medical tape to keep his feet in a more normal position. We are working on getting DAFOs or braces for his feet. Since they do not bear weight, they are beginning to turn in. Then ECI has also mentioned a stander in the future. We are also discussing a g-tube because Nathan has gotten to where sometimes he is interested in bottling and only takes 30 minutes, but other times he isn't interested, his clonous is bothering him, and it takes 1-2 hours. Please continue to pray for Nathan and our family. As we continuing daily to make decisions and enjoy the time we have with him. We want it to be the best it can be for all four of us as a family.

Bumbo Time

Notice the mat that I put him on and how far he can scoot when he is mad!!!!

ECI - She was working with Nathan to get his hands midline. You will notice his different facial expressions as I continued to take pictures.

Nathan can sleep anywhere during the day :)