Tuesday, August 25, 2009

Update from Stephanie

It has definitely been weird these past few weeks to not be in teacher inservice and to not start the first day of school. I am still using FMLA time. I am really enjoying the time with both boys.

Jacen - He is doing great. He weighed 8lbs 5oz at his last appointment. He has now slept through the night the past two nights. Yeah!!!!! He loves to be held and snuggled. I wish I could do that more, but with two boys I have to share my time. He still doesn't like tummy time.

Nathan - He weighed 7lbs 7oz at his last appointment. We are staying busy with bloodwork twice a week, doctor appointments once a week, nurse visits three times a week, and soon ECI. Everyone that sees him comments that he is less yellow. We are still dealing with liver, kidney, and neurological issues. He is still on lots of medications. He is on the feeding tube and bottle feeding. When we left PICU he was only bottling about 15ccs at each feeding. He is now taking 40ccs. Lately, he has been more awake. When he is awake he loves to look around and likes to watch TV with us. He still likes to be read to and loves tummy time. We thank God for every day that we have with him.

We really appreciate all that everyone has done for us. Thank you for the continued prayers!

5 comments:

Anonymous said...

I didn't know that tv watching was an inhertided trait but clearly Nathan takes after his father.
Grandpa

Anonymous said...

Apparently grandpa can’t spell!
Grandpa

Luft Family said...

Yeah! I am glad you posted Steph. I know the boys are loving their time with their momma! Cherish these moments.

Anonymous said...

Steph,
Thanks so much for the update.
You and Kyle are such an inspiration and blessing to so many people. To see your strength and faith during these past 12+ weeks has taught alot us alot of things - especially what it means to live one day at a time and appreciate what each day brings. Your boys are truly blessed to have y'all as their parents.

Sherita said...

So good to hear from you, Steph. We miss you at school, but I am so glad you have this special time with your boys. Love you!