Teeth, Toys, Thumb, and Tub

This past week we found out the results of the EEG. Nathan is still having some subclinical seizures, but for the most part with medicine his seizures are under control. They will not ever be able to completely stop all the seizures without completely sedating him. The eye twitch is not seizures, so we are happy about that.

Dr. Arnold finally made it to Lubbock to see his nephrology patients. He gave us his best guess as to how long Nathan's kidneys will be able to function. He thinks that he will outgrow his kidneys by age 2. This is a prediction of more time than we have been told by doctors before. At any time though, if his system gets out of whack and his potassium goes high then he could go into cardiac arrest. We are still continuing to do our best to enjoy every moment.

For an insurance update for Nathan, we are, with the help of some wonderful people at church, going to pay for Cobra insurance until we can get something figured out. We are working with Hospice and some other wonderful people to try to get him on Medicaid still since Kyle's insurance has denied him.

We rescheduled the chiropractor appointments to this week because Dr. Sanders had a cold. We will have an update on Nathan's first appointment next week.

We are doing bloodwork again this Monday.

Now for the week in pictures.

Jacen is getting his two front bottom teeth.

Jacen is very persistent when playing with toys. He finally got the yellow part of the toy open, but of course he continued to try the other ones too!

Jacen still loves his thumb, but he has also started holding things and sucking his thumb. I think it is so cute!

Friends from our Sunday School class came over to clean the house on Monday night. One of the girls gave him the whole basket of toys and he loved it.
I have continued to do the same thing this week.

Jacen is figuring out how to move toys to where he wants them. I do not know still how he gets this toy on his lap.

Nathan enjoyed watching the lights and listening to the music on this toy.

I love his precious face.

Nathan was sleeping so peacefully that I couldn't resist taking a picture.

Bath Time

I give Nathan swaddle baths because he stays more calm that way. This is where you swaddle him in a towel and only uncover one part of the body at a time to wash.

Before

After

Jacen