Well, the EEG that was originally supposed to last 2 hours ended up lasting almost 72. Dr. Brown had originally extended it to 24 hours but at the end of that time he was still seeing some seizure activity so he extended it so that he could monitor Nathan while adjusting his anti-convulsion medication. The EEG was discontinued Saturday morning and Steph and I were able to give him a bath and change his clothes and bed sheets. After 3 days hooked to that machine Nathan was ready.
The length of the EEG obviously pushed back other things. The MRI that was scheduled for Friday has been rescheduled for 1:00 today. This has also pushed back getting Nathan off the ventilator. That will most likely happen Tuesday or Wednesday.
We also had an opportunity to visit with Dr. Brown about Nathan's condition and long-term prognosis. He was able to review Nathan's EEGs, head ultrasounds and the MRI images. He informed us that, realistically, Nathan will never progress beyond a newborn/infant developmentally. This means that he will likely never be able to sit up, crawl, walk or talk and his cognitive function will always be that of a newborn.
Obviously, it goes without saying that we continue to pray for a miracle for Nathan. Also, please pray for our family as we look to the future and make plans for caring for both boys but especially Nathan once we get to bring him home.
5 years ago
6 comments:
Your boys are so blessed to have been given such a wonderful family and I know your love for both is a testimony to God's love for us no matter how 'imperfect' we are.
Marcelia
I believe God has a purpose for Nathan and He already knows the man Nathan will be. I know this isnt the news you want to hear but it also isnt news that is set in stone only speculated by the doctor. God alone knows Nathan and his future path and I hope you remember that and take comfort. Your family is loved beyond belief and will continue to have support throughout whatever comes your way.
know you are still in my prayers and my heart
pennye
We have never stopped praying and the prayers will continue. God has a plan for both of the boys. Hang in there. With God on your side all will work out.
Love ya,
Eddy and Joetta Gallardo
I've been thinking about you guys! Tell Nathan I said to be strong like I know he is!! See you at the end of the week! --Keri
Steph & Kyle,
I hope your sweet family feels the huge love and support that you have, and will continue to have.
There are many prayers being lifted up for Nathan and for his "baby steps." Only God knows how far Nathan will progress, but all of us know the love and happiness that has, and will, surround him all of his life. He, along with Jacen, will bring many people joy and smiles every day.
I will pray for God's guidance in deciding the care of Jacen and Nathan and for continued smiles and little triumphs every day as both of your precious babies grow and bring you such joy.
Love ya'll,
Lali
You are in my constant prayers. I lift up each of you to our Father who knows the big picture before we do. I love you guys.
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